Latest news from International League Against Epilepsy on 海角社区 en-us Copyright 2025 海角社区 115 31 / /images/newswise-logo-rss.gif /articles/recomendaciones-de-consenso-sobre-c-mo-afrontar-la-epilepsia-con-mioclon-as-palpebrales-s-ndrome-de-jeavons/?sc=rsin /articles/recomendaciones-de-consenso-sobre-c-mo-afrontar-la-epilepsia-con-mioclon-as-palpebrales-s-ndrome-de-jeavons/?sc=rsin Fri, 07 Feb 2025 19:50:23 EST La EEM es un sindrome epileptico generalizado caracterizado por una triada de caracteristicas clinicas: crisis provocadas por el cierre de los ojos o cambios en el EEG, mioclonias en los parpados con o sin crisis de ausencia, y fotosensibilidad. Se presenta predominantemente en mujeres y suele ser una condicion de por vida que aparece entre los 3 y los 12 anos. International League Against Epilepsy /articles/it-s-all-connected-how-does-epilepsy-affect-heart-health/?sc=rsin /articles/it-s-all-connected-how-does-epilepsy-affect-heart-health/?sc=rsin Thu, 06 Feb 2025 09:40:18 EST People with epilepsy have an increased risk of sudden cardiac death, compared with the general population. Harvard researchers discuss the latest study results and their implications. International League Against Epilepsy /articles/practice-guideline-on-outcomes-after-in-utero-exposure-to-anti-seizure-medications-dr-alison-pack/?sc=rsin /articles/practice-guideline-on-outcomes-after-in-utero-exposure-to-anti-seizure-medications-dr-alison-pack/?sc=rsin Wed, 05 Feb 2025 09:40:46 EST Today's topic is recent guidelines about treatment for people with epilepsy of childbearing potential. The guidelines cover teratogenesis as well as perinatal and neurodevelopmental outcomes after in utero exposure to anti-seizure medications. Sharp Waves spoke with first author Dr. Alison Pack. International League Against Epilepsy /articles/changing-the-term-for-epilepsy-in-malaysia-why-and-how-dr-chong-tin-tan/?sc=rsin /articles/changing-the-term-for-epilepsy-in-malaysia-why-and-how-dr-chong-tin-tan/?sc=rsin Wed, 05 Feb 2025 09:40:03 EST In the medical world, diseases and conditions have sometimes been given inappropriate or even offensive names. The word for epilepsy in many Asian languages translates to stigmatizing terms that neurologists across the region are trying to correct. Sharp Waves interviews Dr. Chong Tin Tan. International League Against Epilepsy /articles/global-neurology-pitfalls-and-purpose-dr-melody-asukile-and-dr-deanna-saylor/?sc=rsin /articles/global-neurology-pitfalls-and-purpose-dr-melody-asukile-and-dr-deanna-saylor/?sc=rsin Wed, 29 Jan 2025 18:40:02 EST With all the best intentions, undertakings in global neurology can include assumptions and biases that lead to unforeseen negative consequences. Sharp Waves spoke with Dr. Melody Asukile and Dr. Deanna Saylor, who discuss some of these unforeseen consequences and talk about what makes for productive, ethical, and sustainable global neurology initiatives. International League Against Epilepsy /articles/los-cursos-de-formaci-n-en-epilepsia-mejoran-la-atenci-n-no-especializada-tambi-n-pueden-impulsar-un-cambio-nacional2/?sc=rsin /articles/los-cursos-de-formaci-n-en-epilepsia-mejoran-la-atenci-n-no-especializada-tambi-n-pueden-impulsar-un-cambio-nacional2/?sc=rsin Tue, 21 Jan 2025 17:05:28 EST Muchos paises carecen de suficientes especialistas para atender a las personas con epilepsia. Incluso en los paises de ingresos altos, un porcentaje significativo de personas con epilepsia reciben la atencion medica de un no especialista. International League Against Epilepsy /articles/hello-my-name-is-epilepsy-how-terminology-influences-stigma-and-understanding-of-epilepsy-around-the-world/?sc=rsin /articles/hello-my-name-is-epilepsy-how-terminology-influences-stigma-and-understanding-of-epilepsy-around-the-world/?sc=rsin Tue, 21 Jan 2025 09:40:08 EST In many languages, terms for epilepsy have derogatory or stigmatizing meanings. In some countries, neurologists are trying to change these terms to reflect our understanding of epilepsy as a brain disease. Can the stigma surrounding epilepsy be lessened by changing the words we use to describe it? International League Against Epilepsy /articles/epilepsy-comorbidities-are-present-before-diagnosis-research-recap-with-remy-pugh-and-dr-chris-tailby/?sc=rsin /articles/epilepsy-comorbidities-are-present-before-diagnosis-research-recap-with-remy-pugh-and-dr-chris-tailby/?sc=rsin Fri, 22 Nov 2024 11:55:09 EST Some people with epilepsy also experience memory and learning issues, as well as depression or anxiety. A study in Australia screened people for these conditions at a seizure clinic, before anti-seizure medications had been prescribed. Compared with the control group, the people at the first seizure clinic had higher rates of cognitive and neuropsychological issues. International League Against Epilepsy /articles/consensus-recommendations-on-navigating-epilepsy-with-eyelid-myoclonia-jeavons-syndrome/?sc=rsin /articles/consensus-recommendations-on-navigating-epilepsy-with-eyelid-myoclonia-jeavons-syndrome/?sc=rsin Fri, 22 Nov 2024 11:45:48 EST Epilepsy with eyelid myoclonia is a generalized epilepsy syndrome characterized by eye-closure-induced seizures or changes on the EEG, eyelid myoclonia--jerks of the eyelids and eye-rolling--with or without absence seizures, and photosensitivity. It appears predominantly in females and usually starts between the ages of 3 and 12. International League Against Epilepsy /articles/epilepsy-training-courses-improve-non-specialist-care-they-also-can-spur-national-change/?sc=rsin /articles/epilepsy-training-courses-improve-non-specialist-care-they-also-can-spur-national-change/?sc=rsin Mon, 11 Nov 2024 11:10:46 EST Continuing education of non-specialists is crucial for improving and enhancing epilepsy diagnosis and treatment. Many countries lack enough specialists to care for people with epilepsy. Even in high-income countries, a significant percentage of people with epilepsy receive care from a non-specialist. International League Against Epilepsy /articles/transici-n-a-la-atenci-n-de-adultos-en-epilepsia-cerrar-la-brecha/?sc=rsin /articles/transici-n-a-la-atenci-n-de-adultos-en-epilepsia-cerrar-la-brecha/?sc=rsin Mon, 11 Nov 2024 10:00:13 EST Para los adolescentes que son atendidos por personal medico pediatrico por fuera de un centro integral de epilepsia, el cambio de la atencion de la epilepsia en un centro de adultos puede ser abrumador, tanto desde el punto de vista organizacional como personal. Despues de anos de ser observadores pasivos, se espera que los adolescentes asuman la responsabilidad de muchos aspectos de su propia atencion medica. International League Against Epilepsy /articles/deux-r-gions-de-l-ilae-collaborent-une-s-rie-de-webinaires-ayant-un-impact-professionnel/?sc=rsin /articles/deux-r-gions-de-l-ilae-collaborent-une-s-rie-de-webinaires-ayant-un-impact-professionnel/?sc=rsin Mon, 04 Nov 2024 14:05:09 EST Certains aspects de la pandemie de COVID-19 ont ete de courte duree, comme les confinements et la distanciation sociale. Les webinaires ILAE, en revanche, ont non seulement persiste depuis 2020, mais sont aussi devenus plus frequents. International League Against Epilepsy /articles/reflections-on-the-life-and-career-of-dr-juhn-wada-1924-2023/?sc=rsin /articles/reflections-on-the-life-and-career-of-dr-juhn-wada-1924-2023/?sc=rsin Mon, 04 Nov 2024 13:55:33 EST Juhn Atsushi Wada was a Japanese-Canadian neurologist known for research on epilepsy and brain asymmetry, including the development of the Wada test to assess hemispheric dominance of language function. He became a pioneer in the utilization of the kindling model of epilepsy, which permitted controlled studies of the development of epilepsy in the laboratory. International League Against Epilepsy /articles/astrocytes-and-epilepsy-dr-peter-bedner/?sc=rsin /articles/astrocytes-and-epilepsy-dr-peter-bedner/?sc=rsin Thu, 17 Oct 2024 11:25:20 EST Previously thought to be mere connective tissue and support for neurons, astrocytes are now understood to have many functions in the nervous system that are linked with seizures and epilepsy. International League Against Epilepsy /articles/from-epilepsy-patient-to-epilepsy-surgeon-dr-ashok-pillai/?sc=rsin /articles/from-epilepsy-patient-to-epilepsy-surgeon-dr-ashok-pillai/?sc=rsin Wed, 16 Oct 2024 11:50:54 EST Dr. Ashok Pillai is a professor of neurosurgery and neuroscience; his personal experience with epilepsy led him to train as an epilepsy surgeon and has shaped his perspectives on patient care, including tapering of anti-seizure medications after surgery. International League Against Epilepsy /articles/seizure-action-plans-as-educational-tools-in-epilepsy-dr-lucretia-long/?sc=rsin /articles/seizure-action-plans-as-educational-tools-in-epilepsy-dr-lucretia-long/?sc=rsin Tue, 15 Oct 2024 08:40:02 EST Seizure action plans often are aimed at a subset of people with epilepsy, particularly children. Dr. Lucretia Long discusses how these plans can be used to engage and educate people with epilepsy, their families, and the larger community. International League Against Epilepsy /articles/dos-regiones-de-ilae-colaboran-en-una-exitosa-serie-de-seminarios-web-con-impacto-profesional/?sc=rsin /articles/dos-regiones-de-ilae-colaboran-en-una-exitosa-serie-de-seminarios-web-con-impacto-profesional/?sc=rsin Mon, 14 Oct 2024 12:10:14 EST Los seminarios web cooperativos se lanzaron en junio de 2021 en dos idiomas: frances e ingles. Los beneficios de la empresa cooperativa se extendieron mucho mas alla de lo que esperaban los organizadores. International League Against Epilepsy /articles/the-epileptic-heart-seizures-epilepsy-and-cardiac-risk-factors/?sc=rsin /articles/the-epileptic-heart-seizures-epilepsy-and-cardiac-risk-factors/?sc=rsin Wed, 02 Oct 2024 11:05:33 EST Studies suggest that compared with the general population, people with chronic epilepsy have three times the risk of sudden cardiac death. Researchers have introduced the concept of the "epileptic heart" as "a heart and coronary vasculature damaged by chronic epilepsy... leading to electrical and mechanical dysfunction." International League Against Epilepsy /articles/two-ilae-regions-collaborate-on-successful-webinar-series-with-professional-impact/?sc=rsin /articles/two-ilae-regions-collaborate-on-successful-webinar-series-with-professional-impact/?sc=rsin Fri, 27 Sep 2024 09:05:13 EST Joint epilepsy educational webinars in English and French, organized by the Africa and Eastern Mediterranean regions of ILAE, had impacts beyond expectations. International League Against Epilepsy /articles/the-bumpy-road-from-pediatric-to-adult-epilepsy-care-dr-danielle-andrade/?sc=rsin /articles/the-bumpy-road-from-pediatric-to-adult-epilepsy-care-dr-danielle-andrade/?sc=rsin Tue, 24 Sep 2024 10:05:59 EST The shift from pediatric to adult epilepsy care can be complex. A recent survey of young people with epilepsy found that 25% still saw pediatric neurologists for their epilepsy care. Only 4% said they received clear instructions during the transition process. International League Against Epilepsy